Her
name is Harley.
She lives in Watson, Louisiana and is 4 years old.
She is ONE in 30,000 children and adults who has Cystic Fibrosis
in the United States.
CYSTIC FIBROSIS is the NUMBER ONE GENETIC KILLER OF CHILDREN AND
ADULTS IN THE U.S.
Approximately 1 in 30 Americans are SYMPTOMLESS carriers of the
CF gene and DO NOT KNOW IT - HER FAMILY DIDN’T!
*She hasn’t been told that only half of those with Cystic
Fibrosis will live to the age of 37. Or that many with CF will
not live past their teenage years or early childhood.
*She doesn’t understand why she takes almost 40 capsules
a day just to maintain the weight she has plus other medicines.
*She does not know why she has to take breathing treatments for
40 to 60 minutes a day or why she wears a vest for another 40
minutes a day that beats on her to break mucous up in her lungs
that block her airways so she can breathe like YOU.
SHE JUST DOES IT
IT IS HER NORMAL DAY
Her family and friends will be participating in the Great Strides
Event at LSU on May 15th, 2010 to support the Cystic Fibrosis
Foundation. The CFF has led in research and therapy giving CF
patients a longer life span and better treatments and medicines.
They are the leaders in supporting research for a CURE.
PLEASE DONATE, BUY A RAFFLE TICKET OR JOIN THE WALK AND HELP
US FIND A CURE FOR CYSTIC FIBROSIS!
You can also donate online at:
http://cff.org/Great_Strides/JackieWilliamson
FIND OUT MORE AT HTTP://WWW.HARLEYS-CREW.BLOGSPOT.COM
